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Rare Ordeal Drives Determination

Thursday 6th March / presented by Paul Hunt

Big diseases with bigger names are a concern to us all - but what happens when you have a condition and no one seems to be able to name it, let alone diagnose and help?

Susanna Wills-Johnson has experienced two different rare diseases - and is one of an estimated 1.5 million who lives with these conditions in Australia.

Kylie Sturgess spoke to her about what's being done to promote a registry and develop a national framework - the National Rare Disease Plan - and how vital timely diagnosis, care and treatment is…

All live musical performances are included in our podcasts with the express permission of artists, who reserve all other rights in their music. All music used in our podcasts is licensed under an APRA Community Broadcasting license agreement.

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